TikTok Star Brooke Eby Dies at 37 After Four-Year Battle With ALS

Brooke Eby, the TikTok creator who documented her life with amyotrophic lateral sclerosis and used humor to raise awareness about the devastating disease, has died at age 37.

Eby was diagnosed with ALS in March 2022, when she was 33. Over the next four years, she shared the progression of the disease with hundreds of thousands of followers, offering an unusually candid look at what it meant to live with a condition that gradually affected her ability to walk, speak and perform everyday tasks. She died on Oct. 1, 2026.

Known online as @limpbroozkit, Eby became recognized not only for documenting the difficult realities of ALS but also for finding humor in situations that were often painful and frightening. Her videos covered everything from medications and dating to mobility challenges and the emotional reality of living with a terminal illness.

Turning a Diagnosis Into Advocacy

Eby’s symptoms began with a seemingly minor problem: a limp in one leg. After years of searching for an explanation, she eventually received her ALS diagnosis at 33.

Rather than retreat from public life, she began documenting her experience online. Her approach was direct and often irreverent, helping her connect with people who knew little about ALS and giving patients and families a place to see someone navigating many of the same challenges.

One of her early viral videos showed her taking an ALS medication in an unconventional way, using humor to address the unpleasant reality of treatment. Her willingness to discuss uncomfortable subjects helped make her account a source of information as well as entertainment.

As her condition progressed, Eby increasingly relied on a wheelchair and experienced changes in her speech and swallowing. Even then, she continued posting videos and answering questions from followers.

Building a Community Beyond TikTok

Eby’s influence eventually extended beyond social media. She founded ALStogether, an online community intended to connect people living with ALS and provide support to those navigating the disease.

She also worked with clothing company Silverts on adaptive clothing designed for people with disabilities, turning her personal experiences into practical advocacy.

Her work attracted attention from the broader ALS community, including the ALS Network, which paid tribute to her after her death. Salesforce CEO Marc Benioff also remembered Eby; she had worked for Salesforce for about a decade.

She Wanted Her Story to Live On

Eby understood that her online archive could become useful to people facing an ALS diagnosis in the future.

She hoped her social-media presence would remain available after her death as a kind of visual diary for newly diagnosed patients — allowing them to see what the disease can look like over time and helping them feel less alone.

That goal became increasingly important as she documented the later stages of her illness. Her posts showed both the physical progression of ALS and the emotional challenges that accompanied it, while she continued to use humor as a way of coping.

Remembering Brooke Eby

ALS is a progressive neurodegenerative disease with no cure. Eby was diagnosed unusually young, and her experience demonstrated that the condition can affect people who do not fit the public’s traditional image of an ALS patient.

But Eby’s legacy is likely to extend beyond the disease itself.

She transformed a devastating diagnosis into a platform for education, community and advocacy. Through thousands of posts, she allowed strangers to witness both the difficult and ordinary moments of her life, while encouraging greater awareness and research into ALS.

Brooke Eby died at 37, but the digital record she deliberately created will remain — offering future patients, families and supporters an intimate account of her journey and the person behind the diagnosis.